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“La Marató de TV3”: An effort of the Catalan civil society to support Research and Innovation in Health

In this occasion the “Marató de TV3: Minories que fan una Majoria”, is devoted to rare diseases. La Marató de TV3 is an annual telethon broadcast by Televisió de Catalunya and the Fundació La Marató de TV3 to raise funds for scientific research into diseases which are currently incurable https://www.ccma.cat/tv3/marato/

But La Marató de TV3 is more than just a fund-raising drive. It also informs the Catalan public about these diseases and explains the need for research aimed at preventing and curing them. Just as important as the money raised by the telethon are the scientific publications, the awareness-raising, and public education in scientific questions. Marató funded first research steps that afterwards crystalized in the Smart4Faby project. More information available at http://icmab.es/smart-4-fabry-eu-project-a-project-on-the-fabry-rare-disease-for-la-marato-de-tv3

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