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“La Marató de TV3”: An effort of the Catalan civil society to support Research and Innovation in Health

In this occasion the “Marató de TV3: Minories que fan una Majoria”, is devoted to rare diseases. La Marató de TV3 is an annual telethon broadcast by Televisió de Catalunya and the Fundació La Marató de TV3 to raise funds for scientific research into diseases which are currently incurable https://www.ccma.cat/tv3/marato/

But La Marató de TV3 is more than just a fund-raising drive. It also informs the Catalan public about these diseases and explains the need for research aimed at preventing and curing them. Just as important as the money raised by the telethon are the scientific publications, the awareness-raising, and public education in scientific questions. Marató funded first research steps that afterwards crystalized in the Smart4Faby project. More information available at http://icmab.es/smart-4-fabry-eu-project-a-project-on-the-fabry-rare-disease-for-la-marato-de-tv3

SMART4FABRY PRESENTED AT THE XIII SCIENCE FESTIVAL (BARCELONA)

On the 27th October, our colleague Judit Tomsen form ICMAB-CSIC-CIBER presented the advances for Fabry disease treatment obtained in the context of Smart4Fabry project at the XIII Science Festival in Barcelona. This event inclues more than 200 activities, and is intended to get Science and Technology closer to citizens and society, with a special focus in children and teenagers. This is an excellent way to make society aware of the efforts in Research and innovation at the EU level.

V Consortium meeting in Aarhus hosted by Aarhus University

SMART4FABRY consortium organized its V Consortium meeting in Aarhus (Denmark), kindly hosted by our partner Aarhus University. During two days, (2nd-3rd July), all the partners had an excellent opportunity to discuss last project results and decide the strategy for the next period, including a robust planning until the end of the project. Next meeting will be organized in January in Barcelona.

SMART4FABRY presented at the 6th Symposium of Medicinal Chemistry Young Researchers

Edgar Cristobal, our colleague from Miriam Royo’s CSIC group, presented valuable results from Smart4Fabry at the 6th Symposium of Medicinal Chemistry Young Researchers, organized by the Spanish Society of Therapeutic Chemistry (SEQT). This sixth edition was held in the facilities of GlaxoSmithKline España in Tres Cantos on June 21st, 2019.

As in former editions, this Symposium is aimed to give the opportunity to Post-doc, Pre-doc, Master’s degree, and Bachelor’s degree students to show and discuss their results in research fields as  Medicinal Chemistry, Pharmacology, Organic Synthesis, Molecular Biology, Computational Chemistry, Chemical Biology, Natural Products, Biotechnology, Biochemistry and Crystallography.

Edgar gave a talk focused in the development and optimization of the construct Cholesterol-PEG-peptide.

JUDITH TOMSEN, CIBER-BBN, CSIC- AWARDED AS BEST ORAL PRESENTATION AT ESC 2019

Our colleague Judith Tomsen, PhD fellow at the Nanomol group, was awarded with the best oral presentation at the European Students Colloid Conference (ESC-2019), that took place in Varna (Bulgaria) on 18-22 June 2019. The European Colloids and Interfaces Society (ECIS) organizes biannually ESC meetings of advanced students at PhD and MSc level who are undertaking research in the area of colloid and interface science at a European University. These meetings are intended for students to present their work to their peers and to interact both scientifically and socially. Apart from a few invited senior lecturers, meetings are restricted to PhD students, who have not yet submitted their theses, and to MSc students. Judith presented a talk based on the results obtained in her research activities for Smart4Fabry project, obtaining the award that shows the great interest generated by her talk and project outcomes.

SMART4FABRY STEERING COMMITEE IN BRUSSELS

On the 6th of June the SMART4FABRY project hold its Steering Committee in Brussels. The partners decided to have an in person meeting due to the importance of the decision. We took the chance to use the kind invitation from our Scientific Project Officer, Heico Frima, to carry out the meeting at Covent Garden Building, hosted by the European Commission. It was also an excellent opportunity to show the project progress and plans for the next period to Mr. Frima.

Smart4Fabry at Post WS RAREVIEW Symposium in Madrid

“POST-WS RAREVIEW 2019, Innovation in lysosomal storage diseases” is the name of a high level Conference held in Madrid in April 2019. This meeting has joined more than 100 specialists from different clinical fields focused in lysosomal storage diseases, together with relevant stakeholders from the Pharmaceutical Industry. This forum mirrors, at a Spanish level, the 13th World Symposium  Research for Lysosomal Diseases, were the project was also introduced by Ibane Abasolo. Smart4Fabry was represented by Dr Ibane Abasolo from CIBER/VHIR. This year, Dr Abasolo was invited to present a talk named “Targeted Nanoliposomes for the treatment of Fabry disease”, fully focused in the enhanced treatment for Fabry disease which is the main aim of Smart4Fabry project. This meeting has been again an excellent opportunity to introduce our project to clinicians and industrial partners, opening pathways for scientific collaboration and potential future exploitation agreements.

APRIL IS THE FABRY DISEASE AWARENESS MONTH

All rare diseases need to enhance their awareness and social visibility. April is the month which has been selected as the Fabry disease awareness month. Different initiatives will support this awareness campaign, especially in social media. The ribbon is the proposed symbol to be shared for this initiative. It has been developed by the National Fabry Disease Foundation (US)

EUFEPS ANNUAL MEETING 2019

“Personalized Medicines, Targeted Therapies, Precision Drug Delivery”

6th – 8th March, 2019, in Frankfurt am Main, Germany

From 6th to 8th March 2019, the Annual Meeting of the European Federation for Pharmaceutical Sciences (EUFEPS) took place at Goethe-University’s “Campus Riedberg” in the North of Frankfurt, Germany, hosted by the new EUFEPS President and Conference Chair Prof. Dr. Dieter Steinhilber. The EUFEPS Annual Meeting brought together people from all over the world who are involved in pharmaceutical sciences in order to exchange results, experiences and information, and to build communication and collaboration at regional and global scale. A broad range of sessions for oral and poster presentations covered important aspects of current pharmaceutical research. The event provided scientific sessions on the following topics:

 

BioNanoNet participated the conference and contributed a poster presentation on the H2020 project Smart-4-Fabry, addressing the following topic:

“Novel Lipid-based Nanoformulation for Treatment of Fabry Disease”, S. Resch, C. Schimpel, N. Ventosa, T. Birngruber, A. Falk.

BioNanoNet members Priv.-Doz. Dr. Frank Sinner from JOANNEUM RESEARCH – HEALTH and Prof. Dr. Johannes Khinast from RCPE gave insights into their latest research activities. The next EUFEPS Annual Meeting will take place from 15th to 17th June 2020 in Gothenburg, Sweden.